Sleep Study

This week we had our follow up with the ENT. I so love these appointments. You wait an hour past your appointment time to see a nurse practioner and then another 30 minutes wait for the doctor to only repeat everything you've already told the nurse and nurse practioner. UGH. Anyhow. Last year the doc recommended that Cameron have a sleep study at age 3. We put that off because I was preggers and I was not sleeping at the hospital like that. (I was already mean enough) Now they are wanting him to have it done. Apparently, tonsils are measured on a scale of 1-4, 4 being obstructive and 1 being normal. Cameron is a 3 plus. So the doc wants him to have a sleep study to see if he has obstruction. OK. So I know I'm not a doc, but if we can see that the tonsils and adenoids are huge and obviously we know that Cameron makes a lot of noises in his breathing, why not just get them out. Why put a child and a mother through a sleep study when we all know dang well that he isn't going to sleep which is gonna result in an abnormal reading anyhow. Just so frustrating.

Later that night after the appointment I go into the boy's room to check on him and this is what I find. He is asleep. Feet are on the floor and head is on the bed. This is the first time I've seen him sleep like this, but he does sleep in very weird positions. LOL. I had to get the camera when I saw this. Luckily he was sound asleep and the flash didn't wake him, neither did me picking him up and putting him back in the bed.

So here's to a sleep study. Good luck studying this one's sleep. Good grief. Wish us luck. We have to go in on the 26th and I can hardly contain my excitement.

Doctors with positive outlooks!

Yea, I know....it's funny! You don't get many of these. In fact, since Cameron was born, there have been a lot of times I have despised doctors and the comments they make in regards to Down Syndrome. Cameron had his 6 month follow up with Dr. Montgomery (neurodevelopmental pediatrician) today. This is a 45 minute drive away from home which includes ridiculous tunnel traffic but definitely a trip I would make if I had to ride a bike. This doctor is so positive about Cameron and other individuals with DS. He takes time to focus on all the areas where Cameron has progressed and he sees the potential of people with DS. After his evaluation, he commented on how well behaved and social Cameron is. He of course touched on the motor delays which we are all aware of, but he says Cameron has minimal delays in the cognitive areas.

It feels good to go to a doctor who sees the bright side of our kids. Someone who doesn't see the issues, rather the joy we find from Cameron. And it doesn't ever hurt to have a professional tell you as a parent that "you are doing all the right things". I think that is one of the things you always worry about being a parent, especially a parent of a child with special needs.

So we're good with this doc for 6 months, but I almost look forward to January so I can see him again and walk out of a doctor's office with a smile on my face rather than the urge to break into tears.